Mom's wisdom

"Here's the thing about life. You've got to find those fun things to have about life. This is not necessarily fun.
But you've got to find something fun." - Mom, on June 22, 2012.

Friday, June 1

Stumbling blocks and stepping stones

Mom and Sara, circa 1980-ish.
"Teachers who inspire realize there will always be rocks in the road ahead of us. They will be stumbling blocks or stepping stones; it all depends on how we use them."
There were many rocks in the middle of the road for Mom in the last two weeks. At times it seemed less like a road and more like a never-ending line of boulders, all facing uphill. She went back into Harris Methodist HEB for an infusion of chemo and other medicines last week, and this week she's struggled to stay afloat; she's lethargic, and she has tremors and a weak voice. We're working closely with the hospital to understand what might be causing these new and unwelcome symptoms. Two MRIs seem to indicate her glioblastoma is not to blame - there's no growth, no new tumors. But still, no explanation and no solution.

Then today Mom had surgery to remove an infected Medi-Port, a device that was supposed to make receiving care a little less painful. Putting it in weeks ago was supposed to be a good move, a solution, a blessing.

"This is an easy surgery," the surgeon said. "She'll be sore for a few days but then fine. It'll make everything easier from now on."

I guess that didn't work out as planned.

Mom's out of surgery and resting, already feeling a little better, and surrounded by my loving, tired yet tireless Dad and sisters. But it's not where anyone wants to be. On a sunny Saturday in June, after school lets out for the summer, Mom should be in a pink t-shirt, denim capri pants and espadrilles, sitting by the pool with a book and looking forward to some chilled chardonnay when Dad gets home from work. She should be rosy-cheeked from a workout at the 24 Hour Fitness with her friends, full of funny stories about their children, whom she adores like her own grandbabies. She should smell like lavender lotion and be wearing a touch of lipstick, maybe Revlon's "Wine with Everything" or "Sugar Poppy."

Mom should be planning "Grandma School" in the summer, complete with a curriculum to teach her grandson how to read and sharing tips on writing compelling essays with her soon-to-be-high schooler granddaughter. She should be enjoying retirement and teasing Dad about when he would finally join her. When they would take that barge trip through French wine country.

I guess none of this is working out as planned.

I'm frustrated, exhausted, scared, SO MAD and tired of crying all the time. And I'm coming home to Texas again, as soon as the plane can get me there, and we're all going to lock arms and figure out what else is hurting our beloved Mom, and we're going to fix it. Those doctors better be ready for us.

5 comments:

Alicia said...

Love this post. 100% true down to the color of the lipstick. Looking forward to seeing you tomorrow. xoxo

brandi said...

FYI... She is missed terribly at her exercise class, as she calls it. I have been asked twice "How is Judy? Please tell her I asked about her" by a very sweet lady at the gym. The sad thing is I can never remember her name, but everyone knows Judy's name!

ledmunds said...

Beverly and I went to visit Russell today in prison. Today is his 20th birthday. Girls, please tell your mom that Russell said, "Hello" and that he is thinking of her. He still has that little "surprise" for her and will get it to her as soon as the rest of his belongings arrive to his new unit from his old one. We had another wonderful visit. It's always hard to say bye to him. And please tell Judy that we love and miss her dearly!

Unknown said...

Sara, Thank you for keeping everyone updated on your Mom. You girls are doing a wonderful job supporting both Mom and Dad. Our hearts go out to all of you as you struggle with the difficulties and joys of each new day. Judy has been in our hearts daily. Bless you ALL.

tweetnurse said...

This post makes me MAD!! Putting a mediport in SHOULD be an easy surgery! There a loads and loads of people walking around with mediports put in and changed out all the time! Some one got careless and as a nurse there is NOTHING THAT INFURIATES ME MORE THAN A CARELESS HEALTHCARE WORKER!! If I may ask and feel free to email me if you don't want the whole world to know (atweet2001@Yahoo.com) was this port done at HEB? May I ask what surgeon? I like the tone of this post...you girls get them in line! And let me know if you need back up...I'd be happy to help!! I'm going to head to bed so very angry now!!